OBM Geriatrics

(ISSN 2638-1311)

OBM Geriatrics is an Open Access journal published quarterly online by LIDSEN Publishing Inc. The journal takes the premise that innovative approaches – including gene therapy, cell therapy, and epigenetic modulation – will result in clinical interventions that alter the fundamental pathology and the clinical course of age-related human diseases. We will give strong preference to papers that emphasize an alteration (or a potential alteration) in the fundamental disease course of Alzheimer’s disease, vascular aging diseases, osteoarthritis, osteoporosis, skin aging, immune senescence, and other age-related diseases.

Geriatric medicine is now entering a unique point in history, where the focus will no longer be on palliative, ameliorative, or social aspects of care for age-related disease, but will be capable of stopping, preventing, and reversing major disease constellations that have heretofore been entirely resistant to interventions based on “small molecular” pharmacological approaches. With the changing emphasis from genetic to epigenetic understandings of pathology (including telomere biology), with the use of gene delivery systems (including viral delivery systems), and with the use of cell-based therapies (including stem cell therapies), a fatalistic view of age-related disease is no longer a reasonable clinical default nor an appropriate clinical research paradigm.

Precedence will be given to papers describing fundamental interventions, including interventions that affect cell senescence, patterns of gene expression, telomere biology, stem cell biology, and other innovative, 21st century interventions, especially if the focus is on clinical applications, ongoing clinical trials, or animal trials preparatory to phase 1 human clinical trials.

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Open Access Original Research

Improving Confidence in Dementia Care by Helping Care Staff Articulate Skills They Already Possess: The Value of the Communication and Interaction Training (CAIT) Programme

Katharina Reichelt 1,*, Ewan James 2, Daniel Thompson 1, Shaun Tanney 3

  1. CNTW NHS Trust, Newcastle upon Tyne, UK

  2. Post-graduate Psychology Student, University of Nottingham, UK

  3. CNTW NHS Trust, Carlisle, UK

Correspondence: Katharina Reichelt

Academic Editor: James S. Powers

Received: August 14, 2022 | Accepted: January 09, 2023 | Published: January 18, 2023

OBM Geriatrics 2023, Volume 7, Issue 1, doi:10.21926/obm.geriatr.2301222

Recommended citation: Reichelt K, James E, Thompson D, Tanney S. Improving Confidence in Dementia Care by Helping Care Staff Articulate Skills They Already Possess: The Value of the Communication and Interaction Training (CAIT) Programme. OBM Geriatrics 2023;7(1):12; doi:10.21926/obm.geriatr.2301222.

© 2023 by the authors. This is an open access article distributed under the conditions of the Creative Commons by Attribution License, which permits unrestricted use, distribution, and reproduction in any medium or format, provided the original work is correctly cited.

Abstract

This article discusses the findings from a training programme called ‘Communication and Interaction Training’ (CAIT). CAIT was designed to improve the confidence of carers in their use of communication skills with people living with dementia, particularly when managing behavioural agitation. This pre/post assessment study employed a mixed design, and showed positive effects in terms of quantitative and qualitative features. The participants were mainly from a specialist team who were experienced in managing episodes of agitation in care home settings. Twenty-three staff were assessed on the Confidence in Dementia Scale (CODE), which is a measure for assessing carers’ confidence in communicating with people living with dementia. The findings showed increased levels of confidence in communicating and interacting with people with dementia following the training. The qualitative findings showed improvements in participants’ abilities to articulate their communication strategies (i.e. higher degrees of specificity in their communication skills), indicative of improved dementia ‘literacy’ regarding their interventions. As a consequence of such improvements, it is suggested that greater confidence and literacy would lead to the delivery of better care due to enhanced self-awareness of good practices, and enhanced communication skills both within the staff group and between staff and residents.

Keywords

Dementia; agitation, caregivers, e-learning, training

1. Introduction

People living with dementia experience a number of changes and challenges as a result of both dementia, and the way they are treated by others [1]. Changes in behaviour and mood are common and can be very distressing for the person with dementia and those around them [2]. Typical behaviours include: physical aggression, verbal aggression, self-harm, shouting, restlessness, lack of self-care, etc. [3]. Terms used to describe the behaviours can be disrespectful, offensive and stigmatising [4]. Language has a powerful role in perpetuating stigma in the context of dementia [5]. People with dementia have raised particular concerns about terms such as ‘behavioural and psychological symptoms of dementia’, and ‘challenging behaviour’ [6]. Hence for the purposes of this article we will refer to such behaviours as ‘Behavioural and Emotional Expressions of Need’ (BEEN), an emerging term that is being viewed positively by people living with dementia, carers and clinicians [6].

The national guidelines in many countries promote the use of non-pharmacological interventions as first line interventions for BEEN, but then fail to provide guidance to carry out non-drug approaches [7]. The current NICE [8] guidelines are a good example of this shortcoming, and have been criticised in a recent survey for failing to give sufficient information concerning non-drug approaches [7]. It is our contention that non-drug interventions should be seen as both primary and essential in the management of agitation. In most circumstances they should be first line interventions, and they should always be used even when one’s main intervention is psychotropic medication. Indeed, whether or not a person living with dementia is receiving a high dose of antipsychotic medication or being treated for delirium, the caregivers will be interacting with the person on a frequent basis. In some cases the interpersonal contact will be highly personal, involving help with intimate care activities. If such care is not delivered in a ‘therapeutic’ manner, the actions of the carers may lead to agitation.

There are a number of non-pharmacological frameworks and models developed to assist with the delivery of non-drug interventions: WHELD, DICE, DCM [9,10,11]. WHELD (Improving Well-being and Health for People with Dementia) and Dementia Care Mapping (DCM) are appropriate for institutional settings, while DICE (Decide, Investigate, Create, Evaluate) was developed for family settings. The current authors, however, were keen to help create a framework that could be used across all settings, helping families and staff to become aware of their existing skills in the management of agitation. With this aim in mind, the ‘Communication and Interaction Training’ (CAIT) programme was developed [5,12]. CAIT is an online person-centred training programme designed to help carers and clinical staff acquire greater ‘dementia care literacy’. It provides a common language within a family or service in order to promote consistent care for people living with dementia. CAIT highlights and teaches the micro-skills necessary for providing good dementia care and managing BEEN [13]. The programme recognises carers’ existing skills and builds on these, aiding and refining where necessary. A major premise of CAIT is that carers are the ‘experts by experience’ in managing agitation on a daily basis, and so trainers need to make them aware of their ‘unconscious competence’ and bring their competencies into conscious awareness. CAIT takes a magpie approach, borrowing from evidence-based practices from the clinical and retail sectors, as well as the police and armed forces [5].

While the early trials of the programme were conducted in care homes, it has also been used successfully by staff working in dementia wards, acute hospitals, and community settings [14,15]. It is currently being rolled out across the UK within Cumbria Northumberland Tyne and Wear NHS Trust, Birmingham City Hospital Trust, Sussex Care Partnership, and Pennine Care Trust.

The CAIT programme is composed of six sections: Description of Dementia; Description of Behaviours that Challenge and the CAIT programme; Core Communication Skills (Module 1); Adaptations for Communicating with People Living with Dementia (Module 2); Communicating Around Intimate Care Tasks (Module 3); Use of Care Plans and Delivery of Complex Care (Module 4). Each section contains a series of video clips and nineteen animations to help illustrate some of the key issues. A case study, featuring a man with dementia called Karim, is also used to help guide trainees of CAIT through the programme. Participants of the programme are shown how Karim’s needs change as his dementia progresses, and are able to discuss how best to meet his needs in each of the modules. It is acknowledged that there is a potential limitation of having an example patient who may not be representative of diverse patient populations. A table providing a detailed description of the content of CAIT is provided in Table 1.

Table 1 Description of content of CAIT-online programme.

The content of CAIT was developed from an international review of best practices from both within and out-with the area of dementia [16]. Hence, CAIT is sometimes referred to as a ‘compendium of best practices’. The authors of CAIT had an additional advantage in terms of their development of CAIT, because from 2018 onwards they were involved in producing the new British Psychological Society national guidelines for the management of agitation. These guidelines were deemed necessary because of the aforementioned problems with the NICE guidelines [7]. Therefore, as the authors have been involved in producing a new set of psychological guidelines, they were able to incorporate the key recommendations from these guidelines into CAIT [16]. Consequently, the work of Kitwood, Cohen-Mansfield, Teepa Snow and WHELD [9] are all present as part of the compendium of tools. It is relevant to note that information from the new set of guidelines [16] was used in the present study during the assessment of the qualitative responses of the participants.

2. Method

2.1 Participants

Participants were all clinical staff of CNTW NHS Foundation Trust (18 female; 3 male); their profiles are outlined in Table 2. While information about the range of clinical experiences was collected, details regarding actual ages were not. CNTW is the second largest mental health NHS organisation in England. The recruits were self-selecting and came from the western region of CNTW, responding to invitations from managers and email advertisements on CNTW’s websites in January 2022. All participants worked in older people’s services, which meant they had regular weekly-daily contact with people with dementia. Clinicians working in other specialties were excluded. In order to participate in the training, the participants needed to agree to undertake supervision in the CAIT programme following the initial training, and also be willing to train other CNTW staff to employ CAIT (ie. a ‘train the trainers’ dissemination methodology). As noted from the table, the majority of the staff were working in a specialist team for the management of agitation called the ‘Care Home Education and Support Service’ (CHESS). CHESS provides expert advice and support to local care homes regarding the management of agitation; the staff are experts in non-drug interventions and use of formulations. As such, the participants who took part were expected to have a high degree of expertise in the area of communication prior to the study. The staff were not charged for attending the training, which took place in March 2022.

Table 2 Profile of the participants.

2.2 Materials

The CAIT online programme is a comprehensive module-based training package, designed to support and improve the communication skills of people living with dementia. It was originally developed as a face-to-face teaching package [12]. The programme is supported by a manual and a text book [5]. The CAIT teaching was delivered in March 2022 by one of the authors of the programme in a ‘face-to-face’ two-day workshop, which made use of the online materials.

Confidence in Dementia Scale: CODE is a nine-item self-report questionnaire used to measure confidence in working with people with dementia, particularly focusing on issues of communication. The questionnaire is scored on a five point Likert scale with anchored ratings of ‘not confident’, ‘somewhat confident’, and ‘very confident’. This means that it is possible to gain a total score between 9 and 45, with a higher score representing greater confidence in working with people with dementia. This questionnaire has been used previously in studies on communication [17], and appeared to be a sensitive scale for examining the impact of CAIT in studies of front-line staff. Table 3 presents the questions asked of the participants.

Qualitative assessment: Following the completion of each of the CODE scales (pre and post), qualitative information was obtained from the participants, using a pencil and paper format. The participants were asked to respond to the following question both pre and post the CAIT workshop: “If a new clinical student/trainee asked you to give them guidance on five important communication strategies required to work well with people living with dementia who are distressed, name your five strategies?” The qualitative assessment had a dual function, (i) to generate data for the project, comparing the themes of responses pre and post workshop, and (ii) to act as a process tool within the CAIT workshop to get the participants to start to reflect on their understanding of their skills. For example, to get the participants to start to articulate their skills in relation to dementia care (ie. developing better ‘dementia care literacy’).

2.3 Data Analysis

All numerical data was entered into Microsoft Excel. An analysis of the CODE scores showed they were not normally distributed and thus the more conservative non-parametric Wilcoxon signed rank tests were used to analyse the pre and post CODE median scores. Mean and standard deviation values are also presented in the results table to provide further descriptive information. The qualitative data was analysed using a standard thematic analysis [18]. This involved initially reading the written material, identifying and grouping similar concepts, refinement and use of sorting methods via a number of iterative checks, joint researcher checks, and then labelling of themes. The themes obtained were then compared to strategies from a review paper of non-pharmacological strategies used in the management of agitation [16], which is the precursor document to the new national British Psychological Society guidance on the management of episodes of agitation in dementia.

This study was part of a collaboration between CNTW NHS Foundation Trust and the University of Northumbria. It was run as an in-house ‘service development project’ and sanctioned by the Trust’s Ethics committee. As a consequence of this project, which was developed as a pilot, a larger collaborative project has received ethical approval from the University of Northumbria ethics committee. All participants of this study consented to their responses to be analysed and used towards a publication.

3. Results

Table 3 presents the findings in terms of total median scores of the participants and single item scores on the questionnaire.

Table 3 Median (Md), Means and standard deviation scores for the Confidence in Dementia Scale.

The Wilcoxon signed rank test (W) revealed that total CODE scores were significantly higher after the CAIT workshop (Total Md = 39, n = 23) compared to pre-workshop (Total Md = 33, n = 23; z = -3.96, p = 0.00008), with a large effect size (r = 0.58). Six out of the nine scores showed higher median scores post training. It is also worth noting that there were increased mean values on all items of the CODE questionnaire post training. Thus, it can be concluded that the CAIT programme led to increased confidence in all areas of communication and interaction.

In relation to the qualitative data, the participants’ responses were reviewed by two authors to identify and agree themes, and then the number of items corresponding to each theme was counted providing a frequency rating (see Table 4).

Table 4 Qualitative data of themes pre and post training in CAIT.

The findings presented in Table 4 show that there was an emphasis on general communication skills in both the pre and post groups. However, there was a greater variety and specificity of management strategies identified in the post group. The items identified with an asterisk (*) were assessed as demonstrating greater technical knowledge because they related to skills identified in the latest review of non-pharmacological management strategies for agitation [16].

In the pre-workshop group the most common strategies were: ‘patience’; ‘non-verbal communication’; ‘speaking clearly and slowly’; ‘good eye-contact’; and ‘facing the patient’. In contrast, in the post-workshop group the most common strategies were: ‘understanding and assessing the unmet need; ‘being calm/ reducing emotions’; ‘use of correct body language’. Other common points that arose in the post group were: considering your approach, using formulations and care plans, having a person-centred approach, displaying empathy, understanding the person’s reality with their dementia, creating quiet and safe environments and awareness of preventative activities and therapies fitted to the particular individual’s needs.

4. Discussion

The current study found significant improvements in confidence on all 9-items of the CODE, and also showed a significant improvement in the total score on the scale. This was an impressive finding considering the high level of competence in the participants prior to the commencement of the study. To put the total median scores into perspective, a previous study by Elvish, with a mixed group of acute hospital staff (n = 62), found a pre-intervention median score of 29 and a post-intervention increase to 35 [17].

The positive results are consistent with previous assessments of CAIT [5,13,14], which demonstrated significant post-training improvements. However, the previous studies used bespoke and adapted versions of communication scales [14]. The current study is the first to demonstrate benefits for CAIT using a well-validated scale. The results provide the current authors with confidence in using the CODE in a larger study examining the CAIT training. This confidence is corroborated by the qualitative findings post-training which showed participants identifying a greater range of non-drug strategies, and providing greater specificity with respect to these approaches. Many of the strategies identified in the post analysis were consistent with methods recommended in the new British Psychological Society guidance, the final version of which will be published in full in late 2022 [16].

As noted in the introduction, one of the aims of CAIT is to increase the ‘dementia literacy’ of staff. The themes and strategies mentioned by the participants in the post-strategies suggested improved levels of articulation. Improved dementia literacy has a number of potential benefits in relation to dementia care. For example, it would enable carers to become consciously aware of their actions and strategies, giving them ‘labels’ to describe their actions which they may have previously carried out intuitively or unconsciously [20]. Further, greater literacy within a team would permit better informed conversations about the provision of effective care – what went well, or not so well, and how could things be improved? The current study has specifically focused on the better articulation of communication skills, which is particularly relevant to carers of people with dementia who are frequently called upon to de-escalate episodes of distress and agitation via their use of verbal and non-verbal approaches.

In many respects CAIT is a continuation of earlier work by researchers such as Kitwood [11] and Eggenberger, Heimerl and Bennet [21] regarding communication skills. Eggenberger and colleagues supported the use of person-centred forms of communication, and provided guidance in three areas: carers’ verbal skills, non-verbal and emotional skills, and behavioural management techniques. As one can see from Table 1, which outlined the contents of CAIT, all of Eggenberger’s three features are present in the CAIT programme. It is worth noting, however, that CAIT is more appropriately described as a ‘carer-centred’ approach due to the fact it emphasises the role of carers as being both the foci and agents of change [5].

Despite acknowledging the encouraging findings from this study, there are limitations. For example, it was a relatively small-scale, non-randomised project that did not conduct a follow-up. The study relied on a self-report scale, and there were no observational measures employed. This means the result were open to a social desirability bias, with the participants perhaps rating the programme highly due to them receiving the training for free. The lack of observation also means that while CAIT can claim to have produced attitudinal shifts, there is no evidence of clinically significant behavioural changes in relation to the participants.

While it is important to recognise these limitations, the mixed-design provided useful qualitative and quantitative information. Indeed, through the study the authors were able to demonstrate CODE’s value, even when used with an experienced team working in the area of dementia. Such a finding is important because there continues to be a lack of consensus about what should be regarded as good outcome measures in the area [22,23], and Schepers et al. [24] argue that there are few measures for examining positive capacities in staff that are appropriate for frontline clinical staff. As a result of the findings a new set of studies using CAIT have begun, which are employing CODE and two additional measures regarding ‘staff knowledge about dementia’ and ‘staff self-efficacy’.

5. Conclusion

CAIT is a new carer-centred training programme designed to build on the existing skills of professionals involved in the care of people living with dementia. The current study demonstrated that even when used with a group of experienced care staff, CAIT led to significant improvements in perceived confidence. The CODE assessment tool was shown to be sensitive to the contents of CAIT and, even when used with a small number of staff, the effects of the training were measurable. The qualitative findings outlined the specific benefits of CAIT, showing a greater range and details of communication strategies post-treatment. The authors have also argued that the participants’ responses post-CAIT demonstrate a great degree of articulation regarding management strategies, tentatively suggesting increased ‘dementia care literacy’. It is suggested that higher degrees of literacy is a stepping-stone to the delivery of better quality of team-working and service delivery for people living with dementia.

Author Contributions

KR: original idea, intellectual contribution, writing of article, revisions. EJ: intellectual contribution, writing of article, revisions. DT: writing of article, revisions. ST: writing of article, revisions.

Competing Interests

The authors have declared that no competing interests exist.

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